Thursday, July 22, 2010

Down

Last year my daughter got very ill and was hospitalized. They didn't know what was wrong for a bit but she was eventually diagnosed with systemic juvenile rheumatoid arthritis which is arthritis that affects joints all over the body in a child. The child can also have high persisting fevers and rashes that come and go, which Nora did.

She was put on naprosyn and methotrexate last August and everything went well with this medication. She didn't have any signs of arthritis and the doctor seemed optimistic about her condition because of how well she responded to the medication. She got off naprosyn about 6 months ago and was still doing great with only methotrexate. We even believed that she might never have to deal with arthritis and that it could be a one-time thing. The doctor cut the methotrexate dose in half after 1 year of being on it but about a month with the reduced dosage, she started having the symptoms again :(

The doctor told me over the phone to go back to the full methotrexate dose for another 3 months and made her get a blood test.

Today the nurse called and the blood test shows very high inflammation so she told me it was definitely a relapse. That she was probably in a lot of pain from it so we are putting her back on her full medication with naprosyn and methotrexate for at least 3 months. Things were really getting better with her being taken off the medication, but here we are again. And the hope that she would never have to deal with this again is totally gone.

14 Comentários:

Anya said...

Aww, mashallah sister I can only imagine! Inshallah she will grow up to be a strong girl with a mind of her own and a will to succeed in this life and the next. I'm sure teh pain you feel for her is worse than what she feels in her own body. A person can get used to physical pain but emotional is tough! May god reward your patience mashallah♥

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LK said...

I'm sorry hon. I pray she will get better soon.

Banana Anne said...

Ya ALLAH, I am so sorry to hear about this. It must be so hard for all of you. Insha'Allah, may ALLAH ease her pain and restore her to good health, Ameen!

Sarah said...

I'm sorry... I hope it will be manageable at least with the meds. Poor girl.

Umm Omar said...

That must have been very disappointing. She's in our prayers.

Stephanie said...

As you know I can relate to having ill children and the feelings of powerlessness that accompany it. I'll pray that Allah swt relieves your daughters pain. Inshallah, stay strong Mama!

Technodoll said...

Oh gosh I had no idea - poor sweet girl, and poor you having to see her go through this and there is nothing you can do except pray that the meds work. Sending you good vibes xoxo

Candice said...

Thanks... :) She seems to be feeling OK, bit a bit less energetic than normal and they've said the same at daycare. The day she took the blood test, she was walking and acting pretty normal other than being more tired at the end of the day and the nurse said that with tests like this she was probably in considerable pain... I know kids with JRA have high pain tolerance so I just hope she isn't in as much pain as they say she might be. At least with the medication, she should feel OK again.

Blue said...

Kids have surprising strength, but it still must be hard for a parent to go through this with their kids. She's lucky to have a good mom like you! Sending good thoughts your way!

Susanne said...

I'm so sorry for little Nora. I know it's hard to see your child hurting. :(

Gardens of Sand said...

Candice, my husband's nice was diagnosed at 3 yo with systemic juvenile rheumatoid arthritis. Looking at home videoes, it's obvious now that she had it much earlier, maybe as early as 1 yo. My SIL and neice had many ups and downs as they coped with the illness.

My neice is now a beautiful 22 yo college student. Mashallah she is so strong, resilient, and patient. A real survivor through and through. She is bold, daring, and doesn't let anyone or anything hold her back.

The illness is tough and painful, but children have boundless strength and determination and your daughter inshallah will conquer her illness and will not let it hold her back from living life and loving it.

Candice said...

Gardens of Sand: Wow, how inspirational. They really do have quite some strength!

Gardens of Sand said...

Candice, she really is gr8 with seniors, kids and animals, so much patience and compassion for such a young one. She is als VERY althletic, hard to believe given the severity of her condition. She still has it, one of the few ones where it din't go by adulthood, but it doesn't stop her. Engaged, althletic, working 2 jobs (!!), travelling back & forth to visit granparents, and an A college student. A beautiful person inside and out. Inshallah, your daughter turns out the same :-)

cairo, lusaka, amsterdam said...

Sorry to hear this hun :( She is in my prayers (hugs)

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